Poster: The role of e-registries in advancing Interstitial Lung Disease research

View the poster here.

ILD is a group of rare, heterogeneous conditions causing lung fibrosis and inflammation. Different trajectories across the ILD spectrum call for better disease characterization. The rarity of ILD and other, physical, geographical or financial constraints are key barriers in studying cohorts or registries which are representative of the true spectrum of the ILD population.

In this poster, presented at ICLAF 2024, we share insights from AccessILD, fully remote registry that allows in-depth ILD stratification by combining Electronic Health Records (EHR) and electronic Patient Reported Outcomes (ePRO) data.