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uMed for Patients

uMed for Patients

We're making research accessible for everyone

Join over 6000 research enablers
Participate from home

Who we are

Have you received a message about joining a registry and are wondering who we are?

We are an accredited platform used by healthcare providers to connect patients with medical research opportunities that are relevant to their health circumstances.

If you have further questions about uMed or a study you’ve been invited to please contact our patient support team.

patientsupport@umed.io +1 888 454 5580

Patient Perspectives

"It's been 5 years since my diagnosis but this is my first time taking part in Parkinson's research because of my poor mobility. Being able to take part despite having no internet is a big positive and your nurses make this possible."

Carole Henrickson

AccessPD participant

"The whole process went smoothly, uMed handled everything so I was able to participate entirely from home and didn’t have to travel. The team were extremely helpful, friendly and professional, and were available to answer any questions I had about the study. This made me, and my wife, feel completely at ease with taking part."

Kevin Quinn

Study participant

What is a registry and why have I been invited to take part?

You have been invited to take part because your health records indicate you are suitable to be part of the research.

A registry is a type of study that follows participants over time and collects information on individual patients.

Unlike traditional registries we've developed a novel type of study design that provides researchers with invaluable data about different diseases and conditions, provided by you, on your own terms, from the comfort of your own home, in the form of questionnaires, medical device data and DNA testing.

If you’d like to be part of this research but would like support at any point with the questionnaires or signing up to the study, our team of study support specialists are available by phone to help you throughout the process, and remember you can opt out at any point.

Nurse Mail SMS Letter

The barriers to patient access

We connect patients with research

We never sell your data

We separate all identifiable information from health data

We're HIPAA Compliant

We’re certified by Cyber Essentials

We’re ISO ISO9001:2015 & ISO27001:2013 certified

Our goal is to inform and support

So you can make an informed decision about participating in research

  • 1. Matching you with a registry

    We present a registry to your healthcare provider. If they believe it will benefit their patients, they match the research criteria based on health record information.

  • 2. Receive a study invitation 

    Using the uMed platform, your healthcare provider will send you an SMS or email with more information about signing-up to the research programme, including what’s involved for you.

  • 3. Online questionnaire & your consent

    If you are interested to take part and click on the study link in the message you receive, you’ll then be asked to answer some online questions to make sure you fit the criteria to be part of the programme. If you need any help filling out the questionnaire or signing up to the study, our study support specialists are available to support you through the process, and remember you can opt out at any point.

  • 4. Additional research opportunities

    You will have already provided baseline data from the questionnaire that you will have filled in upon signing up for the registry, this information will be vital for researchers that need to look at trends across large groups of patients. You may also be offered additional studies that aim to gather more detailed information. You will be able to participate in these opportunities from home, and the opportunity to participate will be entirely your choice.

Why take part?

Take part from the comfort of your own home

No physical, cost or time burden of travelling to your healthcare provider, hospital or research site.

Study support line

Our study support line is available to you throughout to ensure you are happy with every aspect of the study. We can provide special assistance with the consent or screening process, and can work alongside your spouse, caregiver or other personal support.

Contribute to a greater cause

Join an amazing community of research enablers and play your part in the development of treatments and cures of future generations.

Receive feedback & insights

See how your participation is contributing to the development of research and access insight on the opinions and situations of others with similar health circumstances.

Opt out at any time

There are no obligations to continue in a study if you change your mind, the choice to participate is always yours.

We take security & privacy seriously

We never sell  your data, and will never share your information with a study without your prior consent.

How is uMed supporting research?

Supporting representation of the wider population

A wide proportion of the UK population are registered with a GP. Working with our primary care research network we are able to offer patients research opportunities who might otherwise miss out due to their background, age or gender. 

Supporting NHS participation in research

GP Participation is crucial to advancing our understanding of medical conditions and the development of new treatments. We take on the workload to enable your GP to take part in research so they can continue to focus on caring for you.

Accelerating the research process

80% of studies are delayed because of a failure to recruit patients; this has a significant impact on the development of treatments and cures. We’re matching patients with highly relevant studies to ensure studies can progress at pace.

We’ve supported dozens of studies across 9 disease areas

Pediatric

Parkinson’s Disease

Kidney Disease

Cardiometabolic Diseases

Alopecia

Asthma

Multiple Sclerosis

COPD

RSV

Examples of Medical Partners

Frequently Asked Questions

  • Who is uMed?

    uMed is a clinical study support company who works on behalf of healthcare providers and study sponsors, including Cohort Science. They will be providing the patient contact and engagement services for this study.  

  • Who is Cohort Science?

    Cohort Science develops and manages studies and registries and they are the study sponsor for AccessPD, AccessCMD and AccessILD.

  • How will my data be used?

    Health data collected from you and your healthcare provider record system will only be used for the research study, and not for any other purpose.   

    We obtain your consent to use this data when you sign up for the study, and this consent includes allowing the study team to share de-identified data (meaning patients will not be identifiable from this information) with external research organisations.   The study protocol, including data sharing provisions has been reviewed by independent ethics committees in the the US and UK. 

  • Will pharmaceutical companies or other research organizations be involved?

    Pharmaceutical and Medical Device companies play a key role in the development of new therapies and will be invited to collaborate with Cohort Science alongside academic and university-based researchers.

  • Are there any risks associated with taking part?

    Whilst every effort will be made to protect patient well-being and dignity, there can still be risks associated with participating in any medical research. Examples of risks include a data breach of information relating to your health information.
    Participation in additional research opportunities will always be at patient discretion and will require additional patient consent. It is important to note that the risks will depend entirely on the specific additional research projects that patients participate in, so participation should be carefully considered using all information provided during the invitation.

  • Will healthcare institutions be paid for patient involvement?

    Participating healthcare institutions and their service providers will be paid administrative costs associated with their involvement in the study.

  • Will patients receive any payment for participation?

    No, patients will not receive any payment.  However, we may allocate donations to relevant disease charities if we ask you to undertake additional tasks for the study such as completing longer questionnaires.   

    We will also keep you updated on the outcomes of research that uses your data and show you how your contribution is improving the lives of others living with disease.

  • What will be involved if I consent to participate in a study?

    If you choose to engage with a particular study, you will be presented with detailed information about the study, including what is involved and if the study requires your health data to be shared with another organisation. It is entirely your choice whether or not to be a part of the study, and if you decide not to participate, it will have no impact on the care you receive from your healthcare provider.

  • Can I Opt-Out?

    Patients can opt out of a study at any time without giving a reason by contacting the study support team using the contact details below. Any data that has already been contributed prior to their discontinuation will remain in the study database.

  • I have more questions: who can I speak to?

    If you have any questions, please do not hesitate to contact uMed at patientsupport@umed.io or +1 888 454 5580, and one of our dedicated team members will speak to you.

If you have further questions about uMed or a study you’ve been invited to please contact our patient support team

Contact us at

patientsupport@umed.io or +1 888 454 5580