Parkinson’s Disease

uMed Cohort

AccessPD is a dynamic platform to accelerate evidence creation for academic and industry researchers in Parkinson's Disease

AccessPD participants contribute baseline health record and patient-reported information that enables researchers to identify sub-cohorts of interest for a further nested project.

These nested projects answer specific research questions by collecting additional data from participants at home, without the need to run expensive standalone studies from scratch.

Gather prospective insights & evidence. in days, not years.

  • Patient Journey
  • Disease Burden & Unmet Need
  • Comparative Effectiveness
  • Medication Adherence
  • Precision Medicine Research
  • Outcomes Research
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Clinical outcomes, PRO’s and biosamples to be collected as part of AccessPD.

Among the data collected, key outcome measures to inform your research include:
  • Clinical Data (from patient’s EHR record)
    • Demographics
    • Comorbidities
    • Date of Parkinson’s Diagnosis
    • Date of Symptom Onset
    • Medication History
    • Family Medical History
  • Patient Reported Outcomes
    • Symptom Identification and Severity
    • HRQoL
    • Activities of Daily Living
  • Biosample
    • DNA Testing

Examples of additional data we can collect for nested projects

    • MDS-UPDRS Questionnaire (motor and non-motor components)
    • Hoehn & Yahr scale
    • Clinical Impression of Severity Index (CISI-PD)
    • Autonomic Function (SCOPA-AUT)
    • Cognition Assessment (MoCa)
    • Hospital anxiety Depression scale
    • Sleep Questionnaire (Epworth scale, RBD screening)
    • QoL (EQ-5D, PDQ-39)
    • Environmental Risk Factors (MERQ-PD-B, PD-RDU-Q)
    • King Pain Scale
  • Objective Tests
    • Olfaction (UPSIT Smell Test)
    • Motor Keyboard Tapping (Bradykinesia Akinesia Incoordination Test)
  • Biosample
    • Serum
    • Whole Blood
    • Urine
    • Skin

Find out more

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For a clear picture of how uMed could work for you, book a free session with our team.

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    Thanks Robert, we’ll call you on 07338 238329 on Tuesday 27th July
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