uMed for Patients

The development of new treatments relies on your participation in medical research.

What is uMed and why have we contacted you?

uMed is a health technology company that connects you to research studies which may benefit you and help advance medicine.

Your healthcare provider may have partnered with uMed to help offer opportunities to participate in medical research that is most relevant for you.

So far we have helped more than 4000 patients participate in studies.
This is having a huge impact on the development of new treatments and cures.

We will never use your data for any purpose other than to contact you on behalf of your GP about research that you may be interested in. If you do not want to participate in any research opportunities then you can opt out.

For more information view our FAQs below.

Why should I participate in a study?

  • Make an impact by contributing to our understanding of medical conditions and the development of more advanced treatments.
  • You will have the opportunity to share your personal experience with researchers.
  • Our dedicated support team will be available to you throughout the study.

Frequently Asked Questions

What does uMed do?

Patient participation in medical research is vital for the discovery of more advanced treatments. uMed partners with healthcare providers to deliver medical research opportunities that are the most relevant for their patients.

This means we can offer you as the patient the opportunity to participate in the research that matters most to you and where you can have the greatest impact.

Who has access to my data?

Under a Data Protection Agreement between uMed and your GP, uMed has access to some data from your health record.

Without access to this information, it would be impossible for us to find the most suitable patients for research studies that can help fight disease.

If you decide to participate in a particular research study, we will always ask for your consent to share your data with a study nurse or trial site.

What information do you use?

Unless you have opted out of NHS data sharing, uMed receives the following information from your healthcare provider:

  • Name
  • Date of birth
  • NHS number
  • Phone number
  • Email address
  • Demographic area
  • Health record information
  • Correspondence between you and your healthcare professional, or between healthcare professionals about you
How are you using my data?

In order to provide relevant research opportunities to you and your healthcare provider we process patient data to our secure uMed Platform. The patient data typically includes name, identifiers, contact details, demographic data and relevant health record data.

We only process this data if you are identified as a potential candidate for a research study and we need to contact you on behalf of your healthcare provider to ask if you would like to participate.

You remain in charge of your data at all times and can opt out of contact, sharing data, or study participation at any time. Only your GP can process your opt-out form. Opt out of sharing your health records – NHS

How do you keep my data secure?

The uMed Platform separates all identifiable information from your health data. Therefore your health data is anonymised and is never presented simultaneously with personally identifiable information (PII).

An encrypted link identifier is the only connection between the two which allows your GP to send you relevant opportunities based on this data.

Do you sell my data?

No, uMed uses your information only for the purpose of helping your healthcare provider to give you the best opportunities to participate in medical research.

What privacy rules do you follow?

uMed conforms to the requirements of General Data Protection Regulation (UK GDPR) that sits alongside the Data Protection Act 2018.

What are uMed security measures?

uMed complies with the NHS Data Protection & Security Toolkit (ODS 8K677), ISO27001:2013, and is Cyber Essentials Plus Certified.

What will be involved if I consent to participate?

This will depend on the type of study being offered to you:

Cohort study (e.g ACCESS-PD Parkinson’s Disease study) – In order to develop more advanced treatments, researchers need to collect information from patients over time to improve their understanding of how patients experience living with a certain condition.

When joining a Cohort study, you will be asked to answer a short questionnaire and may then be offered a range of additional research opportunities most relevant for you.

Importantly, you can participate in these studies at home without needing to visit your GP/hospital, and participating will not cost you anything. Additionally, to show our appreciation for your time, we may offer to make donations to a charity of your choice.

Clinical trial – Clinical trials look into how effectively new treatments work to reduce patients’ symptoms and improve their quality of life.
Participation may involve visit(s) to a GP/hospital site during the trial. For some trials you will be reimbursed for travel and possibly financially compensated for taking part.

Can I opt out?

You remain in charge of your data at all times and can opt out of contact, sharing data, or study participation at any time. Only your GP can process your opt-out form. Opt out of sharing your health records – NHS

"When I first got the message from my GP I wasn’t sure if I was going to sign up as I’m not very good with the internet. But I called the Helpline and the Nurse explained everything to me and I’m really happy that I called. I’m looking forward to being part of Access PD"

Patient Support

Monday - Friday
08:00 - 17:00

Working in Life Science and Research?

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    Thanks Robert, we’ll call you on 07338 238329 on Tuesday 27th July
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