ACCESS-PD

Brief Summary:

ACCESS-PD is a next generation research database and tissue bank (RTB) to advance our understanding of Parkinson’s Disease and accelerate the development of advanced therapies to improve outcomes for patients.

Annual burden of Parkinson's Disease in the UK:

£300 million

Annual cost to the NHS

77,000

Hospitalisations

172,000

Predicted to be diagnosed by 2030

Key Study Information:

  • Treatment Area:

    Parkinson's Disease

  • Study Type:

    Ongoing Observational

  • Study Aim:

    To advance our understanding of Parkinson’s Disease and accelerate the development of advanced therapies to improve outcomes for patients.

  • Sponsor/Owner:

    Queen Mary University of London

  • Goal:

    Ongoing patient recruitment of patient's diagnosed with Parkinson's Disease.

Join this study

Speak to our study support specialist for more information on this study.

15 minutes to participate in this study

  • 1
  • 2
  • 3
  • 4

Step One

Practice - Choose a Study

uMed supports multiple studies sponsored by commercial and academic institutions.

Your practice can choose a study via our website or dedicated web application.

Step Two

Practice - Review & Approve Eligible Patients

uMed runs a study specific search to identify potential participants.

uMed searches are compatible with EMIS or SystmOne. The results of this search are available to your practice in our web application for sign-off.

Previous

Step Three

uMed - Patient Contact

Once approved, we manage patient contact on your behalf via SMS, email and/or letter.

We provide a dedicated study support line for all patient enquiries to minimise incoming calls to your practice.

For most studies, between 10-30% of patients engage with our outreach.

Previous

Step Four

Patient - Consents to Join Study

Congratulations! You've empowered your patients to participate in vital clinical research that is most relevant for them.

Once the study concludes, we will share results and patient feedback with you so that you can see the impact of your participation. Any revenue generated from commercial studies is shared with your practice.

Previous

What does the patient see?

We have built our process so that the patient experiences a seamless experience from the first text message they receive.

Not yet registered with uMed? Join over 400 GP Practices across the UK within the uMed Research Network and take part in the ACCESS-PD study. Join the uMed Research Network.

More about ACCESS-PD

ACCESS-PD is a next generation research database and tissue bank (RTB) to advance our understanding of Parkinson’s Disease and accelerate the development of advanced therapies to improve outcomes for patients.

Register your interest in this study

 

Fill in the below form and a member of our team will be in touch to discuss next steps to participate in this study.

    Study name

    Practice name

    Your name

    Your role

    Email

    Phone number